Gerry and I were trained yesterday on how to give Paisley her injections. She got two injections of ACTH yesterday and will have two a day until next weekend. After that she'll be gradually weaned off of it. She has done amazing with the injections and only cries for a split second. I'm so proud of her!
While she has done very good with receiving her injections there is a chance that it's already making her quite hungry and quite fussy. She slept through the night last night but has been fussing since she woke up this morning. In addition to being extremely fussy she ate about 8 oz more that she usually eats in a day.
Last thing, today was her first visit with the home health nurse. The meeting took a while but was pretty good overall. When the nurse took Paisley's blood pressure it was quite high though so we'll go to the pediatrician tomorrow to see if that was just a fluke.
Other than the fussiness and extra appetite everything seems to be doing well!
I am thinking about and praying for all three of you. It sounds like you guys did a great job getting her seen quickly.
ReplyDeleteI'm coming to see sweet Paisley tomorrow! I snuggle her for a while and maybe you and Gerry can get a tiny bit of rest.
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